01/17/2018

01/17/2018

Hi,
Mom’s been pretty good lately.  We’ve had some interesting conversations and she will occasionally look at Donna and I as we move about and think there are more than just us here.  I heard her talking to Sheila on Sunday and said (I forget the actually words) but something like there were lots of people here yesterday.  It was just Kate, Eric and Addie.  She was very happy when they left.  This is pretty common.  She’s just not comfortable when other people are here, especially kids.  One time she said she was afraid she would get hit with a brick or a bat.  She’s serious, I feel sorry for her to be that afraid.  I constantly try to assure her she is safe, but like most of the time, she knows better.
She saw her neurologist on Tuesday.  She talked about the Meningiomas she has.  She said their main impact would be possible seizures.  If they would start occuring, she said she would treat her with medicine not surgery, due to both her age and mom’s wishes. The Dr. said mom wouldn’t know if she was having any but Donna and I would.  I don’t recall any.  The only thing that came close was the time she wouldn’t respond to Donna and I that one morning which mom later told me was because she didn’t know who we were.  The Dr. said as long as we don’t notice any seizures, she would like to see mom in another year.  That made mom very happy.  We talked about her seeing things that aren’t there.  The Dr. explained that is common in the blind or nearly blind. The brain is used to responding to visual stimulation, but without it, will occasionally “fill in the blanks” with things, hence the hallucinations.  The Dr. told mom when she sees things and mentions them to me, if I say they weren’t there, she should believe me.  A message she’s received now from multiple Dr’s, and her children :).  Advice I’ve yet seen her take.
The home health care nurse came by on Tuesday as well and was pleased with the progress she’s made in her stamina. She suggested another month of twice a week therapy and while I could read mom’s mind saying NO WAY, she consented.
The Occupational Therapist was here today.  She will be a wealth of information and help.  We got a seat for mom in her bathtub and she’s been able to shower while sitting on it.  We then borrowed a seat which slides, allowing her to sit on it outside the tub then slide into it.  It was kinda big for her bathtub.  I talked with the OT about it and she felt it wasn’t the best approach.  She thought the bench seat in the tub along with a handrail device which attaches to the toilet will allow her to more easily get into the tub.  The OT will be back next week and we’ll work on other areas to help mom be a little more independent.  I asked the OT to think of some ways mom could entertain herself considering her lack or hearing and sight.
Finally, we went back to the audiologist today and mom decided against keeping the hearing aid.  The biggest issue was all the “new” ambient noise bothered her.  The fact that we have to yell to converse with her didn’t seem to bother her.
ETA:  Related to the hearing aid decision, I forgot to mention the audiologist said she could tweak the settings to lesson the ambient noise w/o impacting her ability to hear better.  Mom wasn’t interested.  Needless to say I’m very disappointed, but not surprised.
Dave

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